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Channel: Comments on: Expert Opinion: Recent Genetic Research & Migraine
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By: Karen Stanley Haack

I asked Sami’s genetic doctor if there was anything he could do to figure out why she had 24/7 migraines and he said no….goes to show you some docs are out of the loop and this is Shands in Gainesville...

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By: Karen Stanley Haack

I may have to call and educate him…LOL.

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By: Kate Kopasz

Hi Karen! I have a 15 (almost 16) year old daughter with Chronic Daily 24/7 migraine of 4 years duration. We have tried just about everything, and been to dozens of doctors in a few different states....

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By: Kate Kopasz

Just sent you a friend request, Karen, but there was nowhere to write a message…hope you see this before hand so you don’t think some strnager is stalking you! Even if you don’t accept right now – some...

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By: Janice Moore

are we any closer to people with migraines being tested for these genetic abnormalities.

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By: Karen Stanley Haack

I saw your friend request.. My daughter is in the same way. did she have the gardasil shot?

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By: Ellen Schnakenberg

Would like to check out and join the group too Kate

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By: Susan Cleveland

I’m just glad to hear that there is research being done into the “why’s” of migraines.

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By: Rachel Z

so what if they’ve identified some specific genes? they’ve known of migraine associated genes for years, and it hasn’t led to the creation of new more effective drugs. my migraines are daily and so far...

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By: Chave D Sladia

There is also another disorder CADASIL which is a mutation on Chromsome 19. Many who have this mutation also suffer from severe migraines with and with aura.

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By: Amanda Hipp

I recently had a change in migraines and was diagnosed with a Chiari Malformation. Shands Doctor was completely unimpressed until a spinal cord lesion develops(Permanent nerve damage). Certainly...

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By: Nancy Bonk

Hi Amanda, I’m sorry to hear about your recent diagnosis. Are you seeing a doctor who specializes in Chiari now? If not, that may be the way to go. Getting a new diagnosis can be scary, but given the...

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