By: Karen Stanley Haack
I asked Sami’s genetic doctor if there was anything he could do to figure out why she had 24/7 migraines and he said no….goes to show you some docs are out of the loop and this is Shands in Gainesville...
View ArticleBy: Kate Kopasz
Hi Karen! I have a 15 (almost 16) year old daughter with Chronic Daily 24/7 migraine of 4 years duration. We have tried just about everything, and been to dozens of doctors in a few different states....
View ArticleBy: Kate Kopasz
Just sent you a friend request, Karen, but there was nowhere to write a message…hope you see this before hand so you don’t think some strnager is stalking you! Even if you don’t accept right now – some...
View ArticleBy: Janice Moore
are we any closer to people with migraines being tested for these genetic abnormalities.
View ArticleBy: Karen Stanley Haack
I saw your friend request.. My daughter is in the same way. did she have the gardasil shot?
View ArticleBy: Susan Cleveland
I’m just glad to hear that there is research being done into the “why’s” of migraines.
View ArticleBy: Rachel Z
so what if they’ve identified some specific genes? they’ve known of migraine associated genes for years, and it hasn’t led to the creation of new more effective drugs. my migraines are daily and so far...
View ArticleBy: Chave D Sladia
There is also another disorder CADASIL which is a mutation on Chromsome 19. Many who have this mutation also suffer from severe migraines with and with aura.
View ArticleBy: Amanda Hipp
I recently had a change in migraines and was diagnosed with a Chiari Malformation. Shands Doctor was completely unimpressed until a spinal cord lesion develops(Permanent nerve damage). Certainly...
View ArticleBy: Nancy Bonk
Hi Amanda, I’m sorry to hear about your recent diagnosis. Are you seeing a doctor who specializes in Chiari now? If not, that may be the way to go. Getting a new diagnosis can be scary, but given the...
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